Showing posts with label LGBTQ. Show all posts
Showing posts with label LGBTQ. Show all posts

Thursday, January 5, 2023

Finally Flourishing: A Long Journey to Living the Life She Was Meant to Live


 
Finally Flourishing: A Long Journey to Living the Life She Was Meant to Live   



By Adina Kalet, MD, MPH 

 
 


This week Dr. Kalet shares (with permission) what she has learned from witnessing the life journey of a longtime colleague, a physician leader, and a transgender woman ... 
 
 


“Like so many trans people I don’t remember a time that I didn’t feel I was the wrong gender,” Joanne said recently, recalling growing up in the 1950s as a quiet, withdrawn, ‘super-confused’ boy. Until one day in sixth grade,” she continued, “I went to the library and found a few books about transexual people.” The image of a prepubescent boy laying on the concrete library floor reading a book flashed in my “mind’s eye.” I could imagine the deep relief she must have felt to put words to the feelings, learning, for the first time that there were others like her out there.   
 
She described her high school-aged self as a “super-introverted, mute, ashamed,” and very lonely teenager.   
 

Joanne first told me she was a woman in 1990 when she looked very much like the man she had been for the first forty years of her life. She was still the bearded and balding man I had known as my favorite fellowship officemate and partner in a research project on physician-patient risk communication. I was initially shocked by the matter-of-fact admission and graphic description of gender dysphoria. At that point in time, I had no experience talking openly with someone who was transgender. But because of our friendship, I quelled my confused panic and listened carefully. The story, hard to hear, shot through with sadness, depression, loneliness, awkward relationships and periods of self-hatred broke my heart. At the same time, I was struck by the absolute certainty of my friend's femaleness. “I am a woman. I have been all my life.”  
 
Those next few years were a low point. While still living as a man, raising young children, and married for a second time, Joanne and her wife worked hard to hold it together. They both completed their medical training, found meaningful clinical work, and raised their family. However, after being hospitalized for suicidal depression, they knew that moving forward would require Joanne living openly and honestly as a woman.   
 
 
A familiar voice  
 
Almost twenty-five years later, I stared up at the television set in the patient lounge, drawn by the familiar voice I had not heard in a long while.  It was October 24th, 2014, and I watched the all-too-common national news coverage of a mass shooting. The local Chief Medical Officer stood at the podium describing the teenagers in the ICU, who had suffered bullet wounds to the head delivered by a 14-year-old classmate who opened fire in the cafeteria at Marysville Pilchuck High School in a suburb north of Seattle. After describing the gruesome situation as tactfully, clinically, and calmly as possible, Dr. Joanne Roberts said, "Our community is going to mourn this for years." She went on, "I can tell you that we will all go home tonight and cry."  
 
I emailed her immediately. “I saw you. That was you, right?” (I had not seen her for years), “You were so beautiful. What a great communicator, leader, and public physician,” I continued to gush. She politely confirmed this was her and thanked me for the compliments. I realized too late that my comments on her physical beauty and poise could have seemed rather sexist given that she was clearly doing her job expertly as a senior, physician leader. But to be honest, my clumsiness resulted from the powerful relief I felt to see her looking so confident and relaxed in her own personal and professional identity and, truthfully, I was thankful that she was alive.   
 
 
The gift of being “Trans” 
 
Joanne is retired now, living a peaceful life as a single woman surrounded by many close friends. There were hard times after her transition. She and her wife divorced. She remains close with her children who have struggled from time to time with their “dad’s” gender transition but have moved on as she has. 
 
Her three careers, first as a journalist, then a practicing palliative care physician and, finally, her six years as Chief Medical Officer at a hospital in Washington State, have given her many opportunities to consider issues related to gender and work. Reflection, reading, and talking with others have made her wise.  
 
“In my career, it was a gift to be trans, to have been socialized as a boy, and to live as a woman was a gift,” she shared during a recent conversation.  “… after the shooting, for instance… leading as a woman but having the male socialization, allowed me to act with confidence (real or false), …and be strong with the press, families, and law enforcement.” She reflected on how the complex alchemy of her gender as well as her professional journey enabled her to serve the community, helping them face the horrific moment, “…having been a journalist, …. I trust the media; they want to get the news out to the community. It was easy for me to do.”  
 
And finally, she attributes being calm in a crisis, seeing opportunity in bad times, and listening more than talking, to her unique experience of being socialized as a boy and living as a woman. While she readily describes blatant discrimination, she finds ways to empathize with all perspectives and points of view.  
 
Her leadership skills were honed by the many surprises of her gender journey. “One of the biggest shocks of my transition was that my biggest supporters were my conservative friends,” she says, noting the irony. It turned out that the people with whom she had already had a relationship found it much easier to accept her as Joanne. “It is so easy to hate groups and hard to hate individuals,” she notes, “…knowing this has made me a much better leader…you inspire, one conversation at a time.”  
 
 
The depression is cured 
 
Joanne had always wanted to become a physician. In the 1980s, though, despite having finally found a therapist and physician willing to help with the transition using gender-affirming hormone therapy, and even though planning to fully transition surgically and live as a feminine woman, Joanne stopped the transition because many medical schools considered transsexuality a mental illness incompatible with being a physician. This was a fraught, nearly unbearable tradeoff.  
 
Eventually, she was able to transition. “The sadness is gone, it never gets dark, I haven’t had an episode of depression since transition.” The emotionality she gained being able to live as a woman, attributed both to female hormones and the experience of being treated by others as a woman, greatly enhanced her capacity to practice palliative care medicine. Although Joanne is not a highly vocal advocate for the “queer community,” she does supportive work through one-on-one mentoring. “I just want to fit in as a woman doctor. No need for advocacy…” Toward the end of her administrative career, there was no explicit discussion with her bosses about transition. “A lot of people know, and a lot don’t,” she reflected with a verbal shrug. This is what acceptance sounds like.  
 
 
We have work to do…  
 
Less than 1% of physicians and matriculating medical students identify as Transgender or Non-Binary (TGNB). Most practicing physicians have persistent gaps in their knowledge about even the most mundane routine care for TGNB patients despite the increasing number of patients requiring that care.  
 
The public has become more accepting of gender diversity. A GLAAD—the world's largest Lesbian, Gay, Bisexual, Transgender and Queer (LGBTQ) advocacy organization—survey from 2016 showed that nearly 12% of millennials identified as TGNB. Despite the increase in visibility and acceptance, those who identify as TGNB continue to be marginalized in their communities and vulnerable to high rates of depression, self-harm, homelessness, substance abuse, and sexually transmitted infections. Many healthcare settings continue to perpetuate intolerance by denying TGNB patients access to a clinician knowledgeable about gender-affirming care or treating sexual minorities with disrespect.  
 
As medical schools, we have a role to play in diversifying the physician workforce and ensuring that the workforce meets the needs of the communities we serve. We do this by becoming actively inclusive. We recruit students from gender minority groups, make efforts to feature TGNB students and physicians in public messaging, and encourage our current students, staff, and physicians to see themselves in the curriculum, the work, research, community engagement, and social events. We offer clinical care tailored for the LGBTQ+ community.  
 
While Joanne is delighted and envious that the world has become a much safer place for young people to explore their many identities, she hopes that this will lead to more character and caring. She worries that we are not socializing our young doctors “to have integrity, to develop wisdom.” She challenges us to remain clear about why we do this work. “I found in my leadership career when I was younger, I focused on the doctors, when I got older, I focused on patients again…we come to work to serve them…” That is what matters most.  
 


 
For further reading: 
 
https://www.aamc.org/news-insights/we-need-more-transgender-and-gender-nonbinary-doctors  
 
Westafer LM, Freiermuth CE, Lall MD, Muder SJ, Ragone EL, Jarman AF. Experiences of Transgender and Gender Expansive Physicians. JAMA New Open. 2022;5(6):e2219791. doi:10.1001/jamanetworkopen.2022.19791  
 
https://www.aamc.org/media/9641/download?attachment 
 
https://www.aafp.org/news/practice-professional-issues/20181214transgendercare.html 
 
https://www.glaad.org/publications/accelerating-acceptance-2016 
 
 

Adina Kalet, MD, MPH, is the Director of the Robert D. and Patricia E. Kern Institute for the Transformation of Medical Education and holder of the Stephen and Shelagh Roell Endowed Chair at the Medical College of Wisconsin. 
 
 
 
 
 

Thursday, December 24, 2020

Can You Recommend a Good Primary Care Provider?

 Perspective/Opinion


Can You Recommend a Good Primary Care Provider?


by Andy Petroll, MD


Dr. Petroll, who conceived and founded the Froedtert & MCW Inclusion Health Clinic, describes the role that the clinic plays to enhance services to the LGBTQ+ community in Milwaukee and beyond...



Since I began my career in medicine nearly twenty years ago, and as a member of the LGBTQ+ community, I would hear this question frequently. Usually, the next sentence was the questioner expressing a preference for a provider who was, themself, a member of the LGBTQ+ community, but stating that they would be willing to settle for someone who wasn’t. At minimum, they wanted a provider who would make them feel comfortable and would easily understand them when they talked about their sex life, their gender identity, or their relationships with their partner and families, while also providing them with the care they needed. I’d always do my best to make a recommendation, but I knew that what they were looking for was hard to find, especially if their insurance required them to stay within one health system or if they wanted a provider in a certain part of town. A handful of large and mid-sized cities had LGBTQ- focused clinics, many of which had been well-established for decades, but here in Wisconsin, there were none.


Identifying concerns for LGBTQ+ patients

What would often follow this question was a story about a negative experience in healthcare. Sometimes, their provider had not understood or had not wanted to hear about the kind of sex they were having. Maybe they were asked which parent was “really the mother.” Maybe they were called out of the waiting room by their legal name, rather than the name they actually used and that reflected their gender identity and appearance, sending shockwaves of embarrassment, anger, or fear through their bodies immediately before entering the exam room. Maybe they had asked for medication for HIV prevention and their provider was unfamiliar with or unwilling to learn about it or, worse, chastised them for even asking. In some cases, they had subsequently acquired HIV. Maybe they had had a good experience with their provider, only to have a staff member ask them an inappropriate question, or, horrifyingly, try to convince them that their sexual orientation or gender identity was immoral. Maybe their provider was “nice enough,” but “seemed uncomfortable” discussing sexual health, or never offered appropriate screening for STIs or certain kinds of cancers.

Of course, the stories I heard were a skewed sample. People who were satisfied with their care wouldn’t have reason to ask me for a recommendation or tell me their story. Nonetheless, after years of these conversations, I knew there was a demand for better healthcare for LGBTQ+ people. People wanted a combination of things:

  • A physical space that made them feel like they belonged

  • Clinic staff that would understand them without having to explain themselves

  • A provider who would know what preventive tests they needed and who would comfortably listen to and competently answer questions about their sexual health

  • A provider who could explain and prescribe medications that would affirm their gender

A provider who would know that it may have taken extraordinary courage for them to even come to the appointment.


Meeting an unmet need

The hope to meet these expectations formed the vision for the F&MCW Inclusion Health Clinic. The journey from conceptualization to inauguration was long. Along the way, when presenting this idea to senior leadership, I was met with enthusiastic support beyond my expectations. Appropriately, we were asked to formulate business plans similar to any new, proposed venture. After revising our plans, assembling MCW providers with significant expertise, training staff, decorating our clinic space, developing of a webpage, and doing outreach at community events, the plans for the clinic were approved. After more than three years of planning, we opened the F&MCW Inclusion Health Clinic in July 2018.

The goal is for the clinic to deliver comprehensive care within a clinical space that feels familiar and welcoming by providers who are experienced with and passionate about LGBTQ+ health. The clinic opened with six providers from several specialties (Internal Medicine, Infectious Diseases, Obstetrics/Gynecology, Psychiatry). The clinic population grew steadily, limited only by the number of new patient openings we had available. Over time, we delightedly welcomed additional enthusiastic providers from additional specialties (Endocrine, GI) into the clinic. Recently, we onboarded two new primary care providers to help meet the demand for our services including,notably, the clinic’s first transgender physician, bringing the number of providers to twelve.


The response

Reactions to the clinic have been more positive than I had even imagined. Often, patients start their first visit by expressing gratitude that the clinic was opened, even before we have provided them any care. Others express that their visit to the IHC was the first time they felt truly comfortable in a healthcare setting. Some are elated to begin their journey of gender affirmation easily and without barriers. Parents have been relieved to finally find a place where their adolescent children (we see patients age 15 and older) can get the care they need and have their questions answered. Community organizations and major corporations have invited us to speak about the clinic and a national conference requested that we present on the process of opening it. Patients travel from Milwaukee, throughout Wisconsin, and at least two neighboring states to see us. Our patients have been integral in providing feedback that has helped us improve. Some have pointed out the flaws in the multitude of systems and personnel that constitute their experience in our healthcare system. Some wish they didn’t have to wait so long to see us (thankfully, now, they don’t!). We are grateful for all types of feedback. We view this clinic as a community resource that should be continuously shaped and grown through input and feedback from the community we serve.

Do we really need a specialized LGBTQ+ clinic? Shouldn’t every provider be able to provide care to this population?

These are appropriately challenging questions that I heard several times during the journey to develop the IHC. In theory, the questioners are right. Ideally, all clinics and providers should be able to provide competent, comprehensive, and affirming care to LGBTQ+ patients. In reality though, without purposeful efforts in every clinic, staff members who create a welcoming environment, and providers who become culturally fluent and clinically competent delivering LGBTQ+ healthcare, patients will continue to have the kinds of negative experiences I described above.


Reaching beyond our walls

In addition to striving to be a center of excellence for LGBTQ+ healthcare, we also view the IHC as a catalyst for improving LGBTQ+ health in our region. We regularly provide clinical education on LGBTQ+ health to providers in our system and our state. This semester, our newly approved M4 elective in LGBTQ+ health began offering MCW students the chance to graduate with a more in-depth understanding of how to provide LGBTQ+ healthcare. We also regularly provide clinical experiences for MCW housestaff. I hope that with continued educational efforts, there will come a day when a clinic like the IHC is no longer needed. Until then, the IHC, and other clinics like it, are essential for the lives, health, and dignity of LGBTQ+ people.

It has been an honor to be able to bring the IHC into being. I couldn’t possibly name all the people whose support and hard work were essential in developing the clinic. Nonetheless, I am extremely grateful for their work and their encouragement. I am humbled by the passion and dedication of my colleagues in the clinic, both providers and staff members, and by the administrators from multiple departments who pour their hearts into supporting this multispecialty clinic.

Our work will continue. We see many ways to expand the size and scope of the clinic to better meet our patients’ needs and will continuously pursue these ideas. We will continue to solicit and react to our patients’ feedback with the goal of optimizing their care. We will continue to educate learners to populate the healthcare professions with competent and enthusiastic providers of LGBTQ+ healthcare. We will know we achieved our goal when every LGBTQ+ person can walk confidently, without fear or hesitation, into our clinic, and every medical clinic, and receive outstanding, complete care, with the dignity they deserve.


RESOURCES:

  • If you want to learn more about the Inclusion Health Clinic, visit Froedtert.com/lgbtq

  • If you are interested in having our group provide LGBTQ health training for your clinic or department, please email me.


If you are interested in self-directed learning on LGBTQ health, I recommend the National LGBTQIA+ Health Education Center (https://www.lgbtqiahealtheducation.org/) which has dozens of high- quality learning modules.


Andrew Petroll, MS, MD, is an Associate Professor in the Division of Infectious Diseases in the Department of Medicine at MCW. He is Medical Director of the Inclusion Health Clinic.

Friday, September 4, 2020

Student and Resident Behavioral Health at MCW: A Personal Perspective

From the 9/4/2020 newsletter


Perspective 

 
Student and Resident Behavioral Health at MCW:  A Personal Perspective
 

David Cipriano, PhD – Director of Student and Resident Behavioral Health
 

Dr. Cipriano describes the challenges and rewards of running the Student and Resident Behavioral Health program at MCW. Sign up here to hear him describe the state of our program at an upcoming Kern Connection Café …
 

I became D
irector of Student and Resident Behavioral Health about four years ago and I’ve always had a knack for being in the right place at the right time.  At that time, the institution as a whole was really beginning to sit up and take notice of learner mental health and well-being in a comprehensive way.  Now, MCW has always taken care of its students and residents with mental health services and available wellness activities.  But, four years ago, MCW tackled the issues in a really planful and big picture way – looking at curriculum, community, and culture.  Since then, I have been riding a wave of enthusiasm and support for this mission – the mission to increase protective factors for our learners – such as access to care and a supportive community – and to decrease risk factors such as stigma and shame and isolation.  I’ve never had a job where I had so many people coming to offer ideas, suggestions, and resources.  
 
 
Results of the 2017 survey
 
Being a data guy, I wanted to “take the pulse” of our students’ behavioral health (if you haven’t been able to tell already, I am using “mental health” and “behavioral health” interchangeably).  In 2017, we conducted our first Mental Health Climate Survey of our medical students (shame on me for not including our graduate students at the time – and I’m a product of graduate school!).  We found high levels of depressive symptoms among our students (higher than the general population, but actually a little lower than estimates of medical students nationally).  We also found a certain number of our students dealing with suicidal thoughts daily or weekly; not out of line with general prevalence numbers, but still frightening.  Almost 20% of our respondents said that they didn’t know if they had a mental health diagnosis, telling me that I needed to work on mental health literacy with this group.  Finally, it turned out that despite high visibility of our services, a large proportion of students who said they needed help did not seek it.  Barriers to getting help included time, cost, and fear of stigma or – worse – negative implications for licensure.  
 
 
What we did next
 
Since then, we’ve worked hard to break down stigma by having faculty and students share stories of their own struggles.  We’ve tried to address the time issue by setting up special student clinics on Thursday afternoons when they have the most flexibility and a resident clinic on Tuesday evenings.  We’re giving students and residents more opportunities to self-assess, trying to increase that self-awareness and literacy piece.  A new online, self-help, cognitive behavioral therapy program called SilverCloud was brought onboard last year – talk about accessibility – it’s available 24/7!  We re-booted our website (www.mcw.edu/thrive) and rolled out support groups that are drop-in and usually include lunch (when we’re all back together!).  And, new this year we have added a student assistance program with a range of services, including an expanded network of providers (of course our learners can still choose our own MCW providers).  And, perhaps most importantly, the school expanded the benefit for students to ten no-cost sessions per academic year.  
 
Personally, I have never felt so energized and rewarded by a position.  Our learners are an at-risk population.  Healthcare trainees, including those in pharmacy, health sciences, and medicine, have higher levels of depression, anxiety and burnout than their age- and education-matched peers.  With an already stressed healthcare workforce, it benefits us all to see that we turn out the next generation of healthcare workers and scientists primed to be resilient and healthy.  
 
We re-did the Mental Health Climate Survey in early 2020 (actually before COVID-19 struck) and I’ll be sharing the results of that at the upcoming Kern Connection Café on September 17th.  We’ve seen some improvements and some stubborn findings that simply tell us that we have to keep working at it.  I hope you’ll join us to share in the discussion.
 
 
David J. Cipriano, Ph.D. is an Associate Professor in the MCW Department of  Psychiatry and Behavioral Health and Director of Student and Resident Behavioral Health. He is a member of the Community Engagement Pillar of the Robert D. and Patricia E. Kern Institute for the Transformation of Medical Education. 

Friday, July 10, 2020

The Issues of Bostock and the Supreme Court Ruling on LGBTQ Health

From the 7/10/2020 newsletter


The Issues of Bostock and the Supreme Court Ruling on LGBTQ Health


Jesse M. Ehrenfeld, MD, MPH, FAMIA, FASA


Dr. Ehrenfeld explains what the recent US Supreme Court decision – Bostick v. Clayton County – does and does not mean for people who identify as LGBTQ, and offers ways to get involved at MCW and beyond…


On June 15, 2020, the U.S. Supreme Court announced a historic ruling that has catapulted America and LGBTQ equality forward by guaranteeing equal opportunity for LGBTQ people in employment. The 6-3 Bostock v. Clayton County decision is likely to lead to more changes in courts at all levels across the nation in the coming weeks and months. I’ve been asked to give some perspective on the impact of the ruling, and what this means on the journey for complete LGBTQ freedom in America.


What We Won

The Supreme Court ruled that Title VII prohibits workplace discrimination based on sexual orientation or gender identity. This is an important change in that while Title VII has long prohibited sex discrimination, the Supreme Court has now interpreted the law more broadly to protect LGBTQ people. The ruling indicates that sex discrimination includes discrimination on the basis of sexual orientation or gender identity.

Because of this expansion of how sex discrimination is now interpreted in relation to Title VII, I expect that a number of other in-progress lawsuits around the nation will also soon provide important nondiscrimination protections in similar laws where sex discrimination is banned. Key examples include health insurance (Affordable Care Act), housing (Fair Housing Act), credit & lending (Equal Credit Opportunity Act), and higher education funding (Title IX). These are a few examples that are among dozens which are embedded in other state and federal laws which prohibit sex discrimination.


What We Didn’t Win

There are a number of areas where LGBTQ people still lack any protection in federal law, because sex discrimination is still not prohibited by statute. Within the Civil Rights Act, Title II covers business services and public accommodations. Unfortunately, Title II does not provide any protection against discrimination on the basis of sex – and therefore is not likely to be interpreted as providing protections for discrimination against LGBTQ people.

There are also no protections for sex discrimination in Title VI, which is the federal law that bans discrimination across all federally funded programs and services. Again, since it has no prohibitions against sex discrimination, there are no current protections for LGBTQ people in the important areas covered by Title VI – which are effectively any program that receives federal funding (including thousands of state and local government-sponsored programs and activities).

It should be clear then why there is still an important, urgent need for federal legislation that codifies the Bostock decision and provides nondiscrimination protections to sex, sexual orientation, and gender identity. The Supreme Court ruling also does not provide any guarantee of equal opportunity for military service for transgender individuals – an issue near and dear to my heart (see link).

Finally, the ruling does not protect children from being subjected to conversion therapy, a practice that – while widely discredited by every major reputable medical society in the U.S. – still persists. Conversion therapy attempts to change an individual’s sexual orientation, sexual behaviors, or an individual’s gender. Underlying these techniques is the assumption that homosexuality and gender identity are mental disorders and that sexual orientation and gender identity can and should be changed. It is estimated that in the U.S. approximately 57,000 youths will receive these type of change efforts before they turn 18 years old.


What You Can Do

As physicians, health care professionals, educators, and trainees we must weigh in on these important issues around health equity and LGBTQ equality. Legislative action is needed to expand and codify protections against discrimination, and our voices are essential to this work.

Outside of legislative action we, as biomedical and population health researchers and health care providers, can continue to use science to push for progress. At the Advancing a Healthier Wisconsin Endowment, the statewide health philanthropy established by MCW, we invest in projects that are working to understand and address health disparities, including disparities among the LGBTQ population. We are striving to do more to build a healthier future for all marginalized populations, including LGBTQ people.

As educators, training the next generation of researchers and health care providers, we can insist on inclusive training standards. This is in fact the subject of a forthcoming perspective piece, in Academic Medicine, which will be published later this month.

As coworkers, supervisors, and mentors we must be visible allies and advocate for our LGBTQ colleagues. Add your name to the list of allies through the MCW Academic and Student Services webpage. Share with your entire departments the MCW employee resource groups available to support them, including the newly created MCW LGBTQ Resource Group (here are the announcement and contact information). Do everything you can to build a welcoming workplace where students, staff, and faculty can be their true selves each and every day.

We can take action today to make change. Otherwise, we may be waiting another hundred years for court cases to work their way through the judicial process.



Jesse M. Ehrenfeld MD MPH FAMIA FASA is a Professor of Anesthesiology at MCW. He serves as Senior Associate Dean & Director of the Advancing a Healthier Wisconsin Endowment.