Showing posts with label Palliative care. Show all posts
Showing posts with label Palliative care. Show all posts

Thursday, May 11, 2023

Reflections on Mother’s Day: You Become

 From the May 12, 2023 issue of the Transformational Times - Mother's Day




Reflections on Mother’s Day: You Become




Adrienne Klement, MD


You can’t have it all........ all at once.
-Ruth Bader Ginsburg


It was a hot July in Durham, North Carolina. I had just finished fellowship and was starting my new role as an Attending in a large academic hospital when I had my first daughter. I planned for six weeks of maternity leave, thinking this would be “enough,” while my husband was on his Trauma rotation as a chief resident in Orthopedic Surgery. I went into labor on a Saturday night, and we decided that he would finish his call shift and work through the night, while I “slept” after my epidural was in place. Emma patiently waited for him to finish his 28-hour call shift. She even gave him a few hours of rest—on the bench by the window—before her arrival. (Ask any resident—we could sleep anywhere). The first few days of parenting were joyous and blissful. Then my husband went back to work, often leaving before 5:00 AM and getting home well after 8:00 PM. Naively, I decided because I would be home with Emma, that he would plan his busiest rotations for July and August. Why would I need any help?


It turned out, the weeks that followed were the lowest, loneliest, and most exhausting I would experience in my life.

I remember asking myself daily: what am I doing wrong to not feel the joy of being a new mother? I quickly minimized my worries and normalized the challenges new parenting entailed. Then two years later, our second daughter was born. You think I would have learned from my experience with Emma to insist on more support...that more support would be paramount to my well-being, and even more so, to the well-being of my first-born child.

Hailey was born in May on a Wednesday in downtown Philadelphia, where my husband was doing his fellowship and I was working as a Hospice Medical Director at the University of Pennsylvania. The day was significant because not only did my husband get two weekdays off, but also that whole following weekend, too. Now, it seems problematic to say, that this felt undeserved, but it did at the time. 

Just before Hailey arrived, we had bought a house in Wisconsin to be closer to his family and our best career opportunities. After delivery, in the context of many sleepless nights and the blurs of nail-biting pain from a bleeding nipple, we decided that I should move there first with the girls while he stayed back to finish his fellowship through July. If I could do it myself the first time, why not the second? And wouldn’t a house be better than a small apartment in downtown Philadelphia? Nonetheless, once in Wisconsin, while my mother-in-law was able to help at times, I felt more alone and inadequate than ever.

Then I recalled a text my aunt had sent to me a while back after Emma was born. She wrote, “this too, shall pass.”


My feelings of overwhelming exhaustion and defeat, of being unqualified and inadequate were validated.

In Medicine, we learn from communication training that without validating emotions, there is often little progress in moving a conversation forward. Recalling that simple message was a turning point for me. From that moment on, a weight was lifted, a burden unloaded. I had a total paradigm shift in how I perceived myself as a mother. The conversation in my head changed from “I can’t do this,” to “I can’t do this alone” to “I am really good at this.” 

Sadly, we live in a society of contractual relationships, in which asking for help without the ability to reciprocate often feels shameful. Asking for help often requires humility, the ability to receive grace, and some level of trust. While I still wish my own mother could have helped me in those postpartum periods, she died when I was a teenager. I can now look back to those times with gratitude and regard for the much-needed growth I experienced without her. I can now fully appreciate, and am so profoundly grateful for how she sacrificed for me, and for the fierce woman she was. I have become this woman, too.


While some miss the extra time with their newborns—I know I finally did after our third daughter Lucy was born—I felt more energized than ever to return to work. I learned to really invest in relationships both inside and outside the workplace. I have met some girlfriends who are truly exemplary in their parenting, and whom I would never hesitate to ask for help. I have found that reading in bed every night with my girls creates a special space for some deep questions about the universe. My favorite questions so far from my now four-year-old Hailey: “Why did your mom get sick and die, and why couldn’t you help her get better?” and “Can I be a ballerina without doing ballet?” and “If that clock was painted on that house, why did its arms move on the next page?” She noted recently in a school activity that “snuggling with mom” is her favorite activity. This gave me yet another shift in mindset. We learn that sleep is essential for the best cognitive performance. 

After almost seven years now, all three of my girls are finally sleeping through the night. At first, getting up to help them fall back asleep was a major stressful event for me. How was I going to do my best thinking and advising while listening to student and resident presentations early the next morning? But the “snuggling with mom” answer, for which I am so grateful for her 4K teacher, allowed me to truly embrace the fatigue and change my perspective. These nighttime interruptions have become a source of rich solitude and joy and serve as a reminder to take care of myself, too, and ask for help.


In my journey as a working mother, I have learned that “work-life balance” is just a loaded and vague buzz phrase.

There are many ways to interpret “work-life balance.” To me, this term puts too much pressure on achieving perfect “balance” with equal emphasis on “work” and “non-work” or “life” experiences. It all cannot happen in a single day. I realize that some days will have different challenges, or unexpected stressors, in which damage control becomes the theme, while others will be filled with deeply meaningful experiences in which I thrive. Hiding in the pantry eating Oreos is just as acceptable of a day in the home, as being celebrated as employee of the year at work.

Now, with three young girls, and as after-school activities abound, a new tactic I have learned is to time-block my schedule in order to bring my most authentic self to work. As the reader knows, Medicine can command our attention, even when not physically present at the bedside or in the clinical exam room. Recently, I was asked as a consultant to assist with a family meeting that was outside of my usual hours when I am physically present in the hospital. I knew the family and residents well, so I decided to call in from home to help. As I was offering my advice on the care plan over speaker phone, a little voice shouted from the bathroom, “Mom can you help me wipe my butt please?!” The patient, his family, and the care team had a good laugh, and care was able to be moved forward in a most goal-concordant and efficient way. I felt honored to be part of that important aspect of care whilst helping my daughter with proper hygiene.


I have come to understand that each part of my life, work and family, provides me with both energy for and respite from the other, and each gives me a sense of real purpose.

In time-blocking my schedule, I find scheduling early morning chart reviews is as important as blocking time for exercise, reading, and moments with my family and friends. And, it is perfectly acceptable to give myself permission that these time investments are not always in perfect “balance.”

Inspired by a Grand Rounds by one of my great mentors who referenced the book, The Velveteen Rabbit, By Margery Williams Bianco, I bought this book and read it to my girls. The story really struck me, especially her words:


“'Real isn’t how you are made,’ said the Skin Horse. It’s a thing that happens to you. When a child loves you for a long, long time, not just to play with, but REALLY loves you, then you become Real.’

‘Does it hurt?’ asked the Rabbit.

‘Sometimes,’ said the Skin Horse, for he was always truthful. ‘When you are Real you don’t mind being hurt.’

‘Does it happen all at once, like being wound up,’ he asked, ‘or bit by bit?’

‘It doesn’t happen all at once,’ said the Skin Horse. ‘You become. It takes a long time. That’s why it doesn’t happen often to people who break easily, or have sharp edges, or who have to be carefully kept. Generally, by the time you are Real, most of your hair has been loved off, and your eyes drop out and you get loose in the joints and very shabby. But these things don’t matter at all, because once you are Real you can’t be ugly, except to people who don’t understand.'”

 

On this Mother’s Day, the advice I would have given to my younger self is this: “This too, shall pass” and “You don’t need to have it all, all at once.” Respect the process and allow yourself to enjoy the journey alongside others. Unconditionally, and with a deep understanding of the journey, I hope to become a source of help for others, and most of all, for my girls one day.


Adrienne Klement is an Assistant Professor in the Division of Geriatric and Palliative Medicine. She works at the Milwaukee VAMC for both Medicine and Palliative Care teams and was awarded ‘Employee of the Year’ in 2021. Dr. Klement is a graduate of the Kern Institute Kinetic 3 Teaching Academy and exceptionally dedicated to teaching communication skills to residents in training.

Thursday, February 23, 2023

Heart Attack



Heart Attack 
Karen Herzog




A path from fear to grace. Ms. Herzog writes about how, for decades, the threat of death was never far away from her mother, yet compassionate caregivers brought both hope and healing ...

 



Compassionate medical care gave my mom 43 more years of life after a heart attack at age 47. 


I was fourteen when the attack began while Mom was carrying hay to the calves on our family’s dairy farm in Iowa. For reasons I don’t understand, it took 24 hours for attending physicians at our small-town hospital to diagnose it. She was admitted for observation, then transferred by ambulance to a better-equipped hospital 30 miles away after tests confirmed her diagnosis the next day. Lack of communication did not give us confidence in her care. I was certain she was dying; a heart attack sounded brutal to a teenager. 
Dr. Andrew Smith, the internist who treated Mom at the transfer hospital, was both an excellent physician and a kind person. She recovered and trusted him implicitly as she continued to see him regularly. He called her his "miracle patient," and made her feel safe in his care. He was thorough in practice and attentive to factors that influenced her health, including the 1980s farm crisis that hit our family hard, and put our land into foreclosure. 

 

Mom cried when Dr. Smith retired thirteen years after her heart attack. I wonder whether he remembered her as fondly as she remembered him. 

 

I felt like I knew Dr. Smith, too, though I never met him. He gave Mom confidence that she could recover and be well again. 

 

I don’t know many details of the heart attack in Fall 1977. I mostly remember the force with which it hit my teenage brain that my mom’s heart was perfect only in a manner of speaking. Her heart was damaged and could stop beating at any time. It’s something most kids don’t have reason to think about. 

 

Every time Mom experienced angina during my teen years, it was scary. The knowledge Dr. Smith shared with her was important to the whole family. It gave us the sense that a frightening situation was under control. 

 

I never got to know the cardiologist in Iowa who kept Mom’s heart going for more than three decades. I moved away after college. Among his greatest gifts to us was arranging for Mom’s aortic valve replacement to happen in Milwaukee, where my sister and I live. He knew the value of her recovering near her daughters, and made it happen quickly with a phone call to a medical school friend. 

 


A surgeon’s smile 

 


Open-heart surgery on Valentine’s Day is both poetic and terrifying.   


The surgery to replace a valve severely damaged by stenosis happened two weeks after Mom turned 78, and two years after Dad died of complications of diabetes. Her surgeon, Dr. Paul Werner, was matter of fact as he talked about the procedure. We didn’t appreciate his personality until we saw his huge smile as he approached my siblings and me after surgery. He told us that in addition to replacing the aortic valve, he did a single vessel bypass while I was in there. His smile was warm, and showed how gratified he was by his craft. 

 

I would like to think the cow valve stitched into Mom’s heart on Valentine’s Day was also a gift from Dad – the dairy farmer who first swept her off her feet at a dance hall called the Electric Park Ballroom in her late 20s.  

 


Post-op gift from a physician neighbor 


 While still in the hospital, Mom was diagnosed with diabetes. My neighbor, Dr. Sophie Kramer, offered to help us navigate the new diagnosis while Mom temporarily lived with me during cardiac rehab. 

 

Dr. Kramer -- well-known among my friends for providing compassionate, excellent care for elderly parents -- made herself available for questions at any time. She agreed to be my mom’s internist when Mom moved from Iowa to Milwaukee permanently, four years later 

 

It didn’t take long for Dr. Kramer to join Dr. Smith in the sweet spot of my mom’s heart, where she remained for eight years, until Mom died. Dr. Kramer set the bar high for excellence with compassion. Her mind focused on clinical care, while her heart cared about Mom’s comfort and quality of life. She listened intently, and gently asked questions to better understand the many challenges in Mom’s daily life due to severe arthritis and other medical issues. We could see the concern on her face, and her genuine desire to relieve the suffering. 

 

 Seven months before her death in 2019, Mom fell out of bed in a rehab unit where she was recovering from a broken leg. We were furious that it happened while the bed was in an elevated position. The next day, we moved her back to her apartment for 24/7 private care and hospice. Her badly bruised forehead was a daily reminder of the trauma, but Mom was happy to be home with her cat, Molly. Within days of the move, Dr. Kramer visited Mom at her apartment. She was concerned. She understood Mom’s need to feel safe again. 

 

I can only imagine how emotionally draining it must be for a physician who practices a holistic approach to patient care. Medical care within tight schedules and corporate management is not conducive to compassion, and neither are the long, exhausting hours of a physician’s practice. I often wonder how compassionate physicians can stay compassionate, and how they maintain their own healthy balance. 

 


Soap opera ending 

 


Fear was a visceral part of our lives until Mom’s heart did stop beating, six minutes into her favorite soap opera, The Bold and the Beautiful, and four days before Christmas in 2019. 



She was 90 and had rebounded dramatically in hospice care. The decision to start hospice care was gradual. We all recognized Mom faced daily challenges on many fronts. Prioritizing her comfort was the right call. She did well with 24/7 caregivers and hospice team members who set her up with a great bed and made her comfortable with massages and oatmeal baths. At the end, when Mom became unresponsive, my sister and I stayed at her bedside. We wanted to make sure her pain was managed, and to hold her hand for our own comfort. 

 

When what I had feared since high school finally happened, it thankfully was so peaceful, my first thought was something I later would have teased her about, had death not been permanent: How could she not stick around until the end of a Friday cliffhanger of The Bold and the Beautiful?” She slipped away quietly as I sat beside her, absorbed in the first six minutes of a soap opera we had watched together for decades. I did not expect her last heartbeat to seem so natural. The grace in that moment took away my fear. 

 

I’m grateful that the Kern Institute at the Medical College of Wisconsin is nurturing compassionate clinical excellence, alongside self-care, as an integral part of physician training.  

 

Patients and their families need the heart of medicine to keep beating. 

 



Karen Herzog recently joined the Transformational Times as Copy Editor. She believes in the power of compassionate medical excellence from personal experience and is honored to be part of the process of medical students and physician faculty members reflecting on their own experiences of hope, resilience, and compassion. As a former journalist who witnessed unimaginable tragedies through decades of reporting, she is amazed by the brain’s ability to compartmentalize. She also understands that what we see, and what we experience, becomes a part of us that requires a gentle touch, too.